4 Positive Things about Having Lupus

As Lupus Awareness Month comes to a close, I wanted to reflect on the positive things my lupus diagnosis has brought into my life. Sure, there’s the fatigue, the pain, the rashes, the lesions, the expensive lab tests and doctors visits, and so much more, but it’s not all bad.

  • There are truly kind, empathetic people in the world. I’ve been the surprised recipient of kindness from people I’ve known forever and from complete strangers. It feels really good to know first hand the goodness that people possess.
  • Science is neat. Yeah, there’s no cure, and the medications available specifically for lupus are extremely limited, but the fact that scientists have developed any medications at all to treat my symptoms, and the fact that sophisticated tests have been designed to detect disease activity is AMAZING. Thanks to science, the death rate of lupus patients has decreased significantly, and I think that’s pretty neat.
  • Support is only a click away. Social media has created close-knit, super supportive communities of lupies. Are you awake at 2am because you’re in pain? Jump on Twitter or Facebook at any hour, and you’ll find dozens of others out there in the same boat as you. They’ll offer words of encouragement, pretty pictures to distract you from your problems, and saucy humor.
  • I appreciate each day. I may not be healthier than the general public, but damnit my resolve has been tested repeatedly, and I still get up in the morning thankful for my life and grateful to be alive. Sometimes I forget that I should be grateful, especially when I’m really suffering. But you’ve never seen a more energetic, more ambitious, happier  person than a chronic sufferer who’s having a relatively pain-free day.

What would YOU add to this list?

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Comments
2 Responses to “4 Positive Things about Having Lupus”
  1. Hi Amber,

    I’m writing to tell you that your post 4 POSITIVE THINGS ABOUT HAVING LUPUS (lupinelife.com/2013/05/29/4_positive_things_about_lupus/) is absolutely spot on! We’d love to feature it on our MyLupusTeam blog if you don’t mind us republishing (we’d include your bio/your byline, link, etc).

    Your writing is so genuine. “Social media has created close-knit, super supportive communities of lupies. Are you awake at 2am because you’re in pain? Jump on Twitter or Facebook at any hour, and you’ll find dozens of others out there in the same boat as you.” <— our readers can relate! 🙂

    We are starting a guest blogging series to bring hope, understanding, and encouragement to people living with Lupus. We would also share on MyLupusTeam.com and on our social media channels.

    MyLupusTeam.com is a growing social network for people with Lupus. We already have almost 20,000 members and 27,000 likes on Facebook. If you're already on MLT, can you let me know your username? That way I can feature you AND the blogpost.

    Email me if you are interested! Have a wonderful day,

    Michelle

    —-
    Michelle M
    michelle@myhealthteams.com
    Social Media Manager, MyHealthTeams.com – @MyAutismTeam @MyBCTeam
    @MyMSTeam @MyCrohnsTeam @MyLupusTeam @MyCOPDTeam @MyRATeam @MyFibroTeam

    • lupinelife says:

      Hi Michelle,

      Thank you for the compliment; I’m happy to have my post re-published on your site! I wasn’t aware of your website before, so I just checked it out, and it’s really great! I look forward to exploring it further and getting more involved. My user name is Amber_lupinelife. Let me know if there’s any other info you need and when you’ll be re-posting my article; I’d like to cross-promote your site in return via a blog post and Twitter.

      Thanks again,

      Amber

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