The Purpose of This Blog
My primary purpose is to join the existing community of people who either have lupus or love someone who has it.
But I’d also like to demonstrate that lupus does not define who I am; I am a writer, a wife, a mother, a friend, and I also just happen to have lupus. So I write about whatever’s happening in my life at the time. Sometimes you may find the content relevant to your own life, and at other times perhaps not. With a little humor and a lot of sarcasm, LupineLife aims to entertain, educate, and inspire–or at least to provide brief respite from your workday.
I began developing arthritis when I was 28. But without health insurance (I was a part-time college instructor), I didn’t get officially diagnosed with lupus until a year later, after my symptoms had become unbearable enough that my in-laws graciously paid for me to have private insurance.
I first wrote about my experience of getting diagnosed and navigating the health-care system on a now-defunct blog. But the story is still available:
Since I first told my story, I’ve worked at physically demanding jobs in order to pay the bills and, ultimately, to have health insurance without my in-laws’ assistance. I eventually landed a desk job that was much easier on my body and stimulated my mind. Now I’m a stay-at-home mom and freelance copyeditor, and my greatest challenge is to ensure that I’m taking care of my needs (sleep & food) as well as those of my baby.
I’ve developed new symptoms over the years and am continuing to learn more about how lupus operates. But I’m excited that this blog has allowed me to meet new people and become part of a larger community of people who are passionate about educating the public about lupus and about just living their lives to their fullest potential. That’s my intention as well. So thank you for taking the time to read about me and my blog, and I hope you’ll keep in touch.
~ Amber, lupinelife.com